Posts Tagged ‘illness’

*I do not speak for all chronically ill people.

Well, I’ve been sick again and it’s fun.  I miss my blog, I love you guys for being patient.  However,, I am writing a five minute post.  I am chronically ill and that’s part of why getting long, thought out, perfectly timed posts is so difficult.  I may actually start an audio YouTube channel because it will be easier a and quicker to get things done.  I just prefer writing – but I guess I can’t have everything.

Over the last few days I have experienced things people should not say to the chronically ill.  Things that have decidedly pissed me off.  Things that make me wonder if the people I’m talking to need to go see the Wizard for a brain.

Without further waiting, here we go, in no particular order:

1.  I know exactly how you feel.  I once sprained my ankle and I had a lot of pain!

Let me get this straight.  You sprained your ankle, once, maybe a couple of years ago, and that equates to a life long, life changing illness that needs to be constantly managed for the rest of your life.  You do not know exactly how I feel.  Unless you are me, and you have the illnesses I do, you cannot know exactly how I feel.  You don’t know how I feel.  What I have in particular is like spraining every area of your body every day.  That said, please stop pretending you understand, please stop being condescending, and please start listening. 

2. Nothing at all.

Society, really, I notice when you are hiding the fact the chronically ill make you uncomfortable.  Why is talking about it such taboo?  Bullshit.  I have health problems.  They are a part of who I am but do not define me as a person either.  You could ask me how I feel, just like I – or any other person chronically ill or not – would ask you if you had like, a 12 hour stomach virus, which is decidedly not life changing.

3.  That sucks.

So do you. 

(this one should be self explanatory)

4.  Just get some sleep.  You’ll be fine.

If only sleep cured idiocy, too.  I sleep more than the average person.  If I don’t get 9 hours of sleep (sometimes I sleep 12 hours, like today) I feel like a zombie.  I feel like I have been out drinking in the city when in reality I just got less sleep than my body demands.  Telling someone shut up and sleep and you’ll be fine is really pretty fucking insensitive.  Listen to us.  Let us talk.  Next time you get into an argument with your brother or sister or parents and have to vent, we are going to say just get some sleep and you’ll be fine.  It’s just not appropriate.  If sleep fixed what I have, I’d break the fucking Guinness book record.

5.  I heard about this Dr. Oz remedy if you eat dog shit and take a bath in deodorant you’ll feel better!

We really dont want to hear about the remedy Dr. Oz talked about because if we knew of a remedy we would probably use it.  A doctor would probably suggest it and if they didn’t, we probably would find it ourselves or ask a support group their thoughts.  You will not fix us.  Sorry, white knight.

Point in case:  LISTEN.  BE SUPPORTIVE.  TREAT IT LIKE ITS REAL. Don’t take us for granted.

There’s more, but I’ll make a part 2.

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